Session Overview
We serve a rare disease community that faces critical encounters in emergency care due to lack of clinical and patient knowledge, inadequate accessible resources and more. We are seeking to develop an app that allows the patient to access critical, life saving information, store crucial diagnostic files and allows for step by step protocol in emergent situations.
Nonprofit Overview
It is the mission of the Myasthenia Gravis Hope Foundation to be the voice of our patients, to focus on bridging the gap between patient needs and clinical interaction, create positive clinical partnerships, to bring advocacy and education to the forefront and to engage in the arts to help foster awareness and challenge the stigmas faced by the growing Myasthenia Gravis community today.